Is there a cure for ald

Francesco odone
What functions did lorenzo odone regain
Lorenzo odone funeral

•

Augusto, Michaela, and Lorenzo Odone

Parents of Lorenzo Odone

Augusto Odone
Born	Augusto Daniel Odone (1933-03-06)March 6, 1933 Rome, Italy
Died	October 24, 2013(2013-10-24) (aged 80) Acqui Terme, Piedmont, Italy
Occupation	Economist
Known for	Inventor of Lorenzo's oil

Augusto Daniel Odone (March 6, 1933 – October 24, 2013) and Michaela Teresa Murphy Odone (January 10, 1939 – June 10, 2000) were the parents of Lorenzo Michael Murphy Odone (May 29, 1978 – May 30, 2008), who had adrenoleukodystrophy (ALD). They became famous for developing a controversial treatment using Lorenzo's oil for their son's incurable illness. This quest was recounted in the film Lorenzo's Oil (1992).^[1] Augusto had previously been an economist for the World Bank.^[2]

In recognition of the parents' work, Augusto Odone received an honorary doctorate from the University of Stirling. He continued to raise funds and drive the scientific task force known as The Myelin Project until his death. Michaela Odone battled lung cancer for some time a

•

Lorenzo Odone

Lorenzo Odone has died from pneumonia aged 30.

(May 29, 1978 – May 30, 2008)

Lorenzo Odone, whose parents’ battle to save him from a rare nerve disorder was depicted in the 1992 film Lorenzo’s Oil, has died from pneumonia aged 30.

Doctors had predicted he would not live beyond childhood when he was diagnosed with the incurable disease aged six. But his parents found what seemed to be a cure made of acids from olive and rapeseed oils.

Lorenzo died at his home in the US state of Virginia on Friday – a day after his 30th birthday. He was suffering from aspiration pneumonia, which was caused by food getting stuck in his lungs.

His father Augusto said: “He could not see or communicate, but he was still with us. He did not suffer… That’s the important thing.”

Preventative treatment

Lorenzo had Adrenoleukodystrophy (ALD), a genetic disease that progressively destroys the brains of young boys. The disease leads to the buildup of dangerous fatty acids – very long-chain fatty acids – in the blood, and within a year childre

•

Subject of 'Lorenzo's Oil' film dies of pneumonia, aged 30

Lorenzo Odone:LORENZO ODONE, who has died of pneumonia a day after his 30th birthday, became famous worldwide as the inspiration behind Lorenzo's oil. The oil, a therapy for sufferers of adrenoleukodystrophy (ALD), a debilitating and ultimately fatal condition, was discovered in 1990 by his parents, Michaela and Augusto Odone. Two years later, their extraordinary achievement - neither had any medical training - was turned into the Hollywood movie Lorenzo's Oil, directed by George Miller and starring Susan Sarandon and Nick Nolte.

Lorenzo was born in Washington DC; he was Augusto's third child but his only offspring with Michaela, his second wife. Soon after his third birthday, Lorenzo moved with his family to the Comoro Islands in the Indian Ocean. Augusto, an economist with the World Bank, had been sent to the archipelago to set up the Comoros Republic's first financial plan. Michaela had given up her job as a publishing editor when her son was born.

His time in the Comoros - an unspoilt tropical par